Health Data Insight C.I.C. is a social enterprise that has been established by NHS employees to deliver information and intelligence for patients, the public and healthcare professionals. As a social enterprise, HDI is overseen by the Regulator to guarantee that we meet our social purpose and to ensure that the value created is protected and used for the public good.
HDI does not handle any patient identifiable data. All data used on HDI equipment is either synthetic or meets the ICO requirements for anonymization; if received from public sector healthcare bodies any data provided has the approval of the organisation’s Caldicott
Where HDI staff work on projects in partnership with others – they do so under appropriate contracts and on equipment and within environments approved by the partner.
HDI has a Board, chaired by David Bower, with Non-executive Directors appointed to scrutinise our work, protect the community’s interests and ensure that we fulfil our social objectives. Individual stakeholder groups exist to guide specific projects; established employees own a share in the enterprise.
Our aims are aligned to NHS and wider government policy to improve transparency and access to data, encourage self management, enable choice and foster the use of social enterprises to deliver public services.
HDI will conduct all of its activities openly and transparently and be held to account through its annual report to the CIC regulator on what it has delivered for its approved communities.
We understand and have extensive experience of using the NHS Information Governance Framework but we are focused on delivery and will be more responsive and less bureaucratic than many internal NHS structures.
Protecting value for the Public Good
HDI intends to contribute to making the NHS the largest and most vibrant social enterprise sector in the world. We decided that the best way of doing this would be to set up a Community Interest Company because approved social objectives and legal articles of association govern all its business activities. This framework guarantees that personally identifiable data will not be used for commercial gain.
We also chose this organisational model because we believe that it is the best way to assemble and utilise the experience and skills of a collection of executive and non-executive colleagues who share the same values about the NHS. In this way we can build a vehicle that would concentrate on generating social value as well as ensuring we capture any financial value that can be reinvested for the public good.
As a regulated social enterprise any assets owned or acquired through the work of HDI are “locked” into the Company and must be disposed of for the benefit of the approved community it serves (which could include national and/or local NHS organisations, patient groups and charities). Commercial gain cannot be used for the personal benefit of either investors or shareholders.
We intend that the products and services that we produce will:
- create value for public sector organisations by finding new knowledge from within existing and new information sources
- provide a data management and linkage service that allows partners to access information within safe-havens that guarantee the privacy of each individual patient.
- create visual internet based information services and applications that can be easily accessed, used and understood
- provide organisations with information and services that they can use to understand and help improve their services
- provide patients with information that they can understand to help improve how they choose, access and use services and understand their clinical condition and care.